Joy's Page (Popularity: )
http://www.lebaronfamily.com Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
MCAD Angel (Popularity: )
http://www.mcadangel.com Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
Mowat-Wilson (Popularity: )
http://www.mowatwilson.org Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.