MDI joined with other members of Rare Diseases Ireland outside the Dáil to launch a new Get Rare Aware campaign calling for the number of conditions newborn babies are screened for under the HSE National Newborn Bloodspot Screening Programme, more commonly known as the heel prick test, to be expanded from the current nine to the European average of 18 minimum. Support the campaign by contacting your Oireachtas representatives and ask them to demand that Ireland is above average when it comes to newborn screening.

An assistive technology has now given the 16-year-old the potential to keep playing music longer. And he has been given the chance to perform at America’s music, tech and film festival.

Are you ready to be the star of your own adventure? At Muscular Dystrophy Ireland we're on a mission to spotlight accessible locations, attractions, and thrilling experiences across Ireland, and we need your help to make it happen. Whether you're exploring solo, with a friend, a partner, or with the family, we invite you to be a part of this exciting initiative.

This research is being conducted to identify and better understand these psychological and social challenges and to raise awareness of these issues and advocate for services to address unmet needs. To participate individuals over 18 years of age need to complete a survey which is anticipated to take between 15-20 minutes.

The main aim of this research is to explore the psychosocial needs including quality of life, coping, social support, depressive symptoms, and anxiety symptoms of individuals living with neuromuscular conditions. A secondary aim is to explore the impact of stigma in individuals living with one of these conditions. To participate individuals over 18 years of age need to complete a survey which is anticipated to take between 15-20 minutes.

We are delighted to announce that Muscular Dystrophy Ireland’s national conference will take place in person on Sunday, 10 November 2024, in Croke Park. There will be two programmes, one for adults and another for under-18-year-olds. Details of the programmes and booking form will be released at a later date. Stay tuned for updates!

This will be Joanne’s 10th time taking part and she would love to have you join her this year💖 #VhiWMM #TeamMDI

MDI’s latest report emphasises the urgent need for improved accessibility in Irish third level institutions. Inclusive Pathways: Navigating third level education for students with neuromuscular conditions highlights the challenges faced by students with neuromuscular conditions in accessing higher education.

All proceeds from the shop and the raffle will be donated to MDI to support youth services in the Northeast. If you are in the area, please drop in to pick up a bargain or buy a ticket for the raffle, some amazing prizes to be won between now and Saturday.

Over the coming months we’re sharing spotlights on individual members of our community who are living with a variety of neuromuscular conditions. We began on Rare Disease Day, 29 February, to draw attention to the fact that rare disease isn’t just for one day. By sharing individual stories and information on their condition, we want to raise awareness about the many neuromuscular conditions experienced by the diverse members of our community to whom MDI offers support. Special thanks to Donal for sharing his story and raising awareness about myotonic dystrophy. The spotlights will be added to a dedicated page on our website so that you can learn about people’s experiences of living with each condition

We are doing research to assist us in creating resources for teenagers with Duchenne Muscular Dystrophy to help them prepare for moving into adulthood. What's involved? An individual interview online or in person with Siobhán O'Shea, postgraduate researcher, Discipline of Occupational Therapy, Trinity College Dublin' if you choose to take part.

We are doing research to assist us in creating resources for teenagers with Duchenne Muscular Dystrophy to help them prepare for moving into adulthood. What's involved? An individual interview online or in person with Siobhán O'Shea, postgraduate researcher, Discipline of Occupational Therapy, Trinity College Dublin' if you choose to take part.