Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders.


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Category: Main » Health » Conditions and Diseases » Rare Disorders	UPDATE URL \| REPORT BROKEN LINK
Contact a Family	Popularity: Hit: 96 \| Visit: 0

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	Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
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Description:	Health, Conditions and Diseases, Rare Disorders - Contact a Family. Information about this organization as well as the CaF directory of specific conditions and rare disorders.
Specialized in:

Cherubs (Popularity:

): A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
National Organization for Rare Disorders, Inc. (Popularity:

): Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan ...
International Rare Disease Support Network (Popularity:

): A community providing more than a 1000 different links to support groups for the people of all nations.
Human Growth Foundation (Popularity:

): Information about growth-related disorders through education, research, and advocacy. Member driven organization.
Nomid /Cinca (Popularity:

): Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site ...
Tetrahydrobiopterin (Popularity:

): Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.
Fibrous Dysplasia Support Online (Popularity:

): For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
Kindler Syndrome (Popularity:

): An article and case study of this rare disease. Includes links.
Lymphangiomatosis and Gorham's Vanishing Bone Disease (Popularity:

): Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Fibrosing Mediastinitis (Popularity:

): The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a ...

Popular Sites

Fibrous Dysplasia Support Online (Popularity:

): For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
Cherubs (Popularity:

): A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Lymphangiomatosis and Gorham's Vanishing Bone Disease (Popularity:

): Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
Contact a Family (Popularity:

): Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the ...
Nomid /Cinca (Popularity:

): Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site ...

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