|
|
Neuroleptic Malignant Syndrome Information Service (Popularity: )
http://www.nmsis.org/
Information about the service as well as the disease itself. Includes research, a hot line and references.
|
|
Pompe's Disease Page (Popularity: )
http://www.pompe.org.uk/
Kevin O'Donnell's Web site. Father of an affected child provides information about this glycogen storage disease.
|
|
United POMPE Foundation (Popularity: )
http://www.unitedpompe.com
Pompe Disease support group. Assisting families with unmet medical costs.
|
|
Pompe.com (Popularity: )
http://www.pompe.com
For individuals and families who are living with Pompe disease, and for the health care professionals who treat them. From ...
|
|
Intracranial Hypertension Research Foundation (Popularity: )
http://www.ihrfoundation.org
Nonprofit organization supporting research and the causes and treatment of IH (pseudotumor cerebri). Information about the condition, patient registry, research ...
|
|
Amnesia Support Group (Popularity: )
http://www.amnesia-society.com
Designed to help amnesia patients and relatives, in coping with all forms of Amnesia and the problem that occur in ...
|
|
Meningioma Support and Information (Popularity: )
http://meningioma.intranets.com
This is a sign up page for those interested in this disease. Joining instructions or log in if already a ...
|
|
The Healthy Brain Project (Popularity: )
http://www.healthybrain.org
Program's purpose is to increase awareness of the brain and its importance in the overall health and longevity of the ...
|
|
Angioma Alliance Website (Popularity: )
http://www.angiomaalliance.org
A resource for cavernous angioma information and support.
|
|
Carnitine Palmitoyltransferase Deficiency (Popularity: )
http://www.spiralnotebook.org
Newsletter for health care professionals and patients interested in CPT deficiency, a mitochondrial disorder of fat metabolism that causes muscle ...
|
|
United Mitochondrial Disease Foundation (Popularity: )
http://www.umdf.org/
To promote research for the cure and treatment, and to provide support to families. The UMDF offers a library, patient ...
|
|
Foundation for a Cure for Mitochondrial Disease, Inc. (Popularity: )
http://mitocure.org
Fundraising for a cure for mitochondrial disease such as Melas, Merf, Narp, and Leighs Syndromes.
|
|
Parents of Galactosemic Children, Inc. (Popularity: )
http://www.galactosemia.org/
Information about galctosemia and a resource for families living with galactosemia.
|
|
European Galactosaemia Society (Popularity: )
http://www.galactosaemia.com
Information about the EGS, galactosaemia, the national groups, the diet and events and publications.
|
|
|