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Birthmark Support Group (Popularity: )
http://www.birthmarksupportgroup.org.uk/
From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and ...
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The New Face Foundation (Popularity: )
http://www.newfacefoundation.com
A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
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XP Support Group (Popularity: )
http://xpsupportgroup.org.uk
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
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Children's Craniofacial Association (Popularity: )
http://www.ccakids.com
Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, ...
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Foundation for Faces of Children (Popularity: )
http://www.facesofchildren.org
Expert information for families and health care professionals about craniofacial conditions.
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Teeter's Page (Popularity: )
http://www.apert.org/
A family support network for people affected by Apert syndrome and other craniofacial disorders.
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The Craniofacial Group - Paris, France (Popularity: )
http://www.cranio-facial.org
Craniofacial Group; Management of anomalies of skull and face : craniosynostosis, facial clefts, hypertelorism, tumors and trauma.
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Parents of Children with Craniosynostosis (PCC) (Popularity: )
http://pcc2000.org.tripod.com/
Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah.
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Stickler Involved People (Popularity: )
http://www.sticklers.org/
Medical information, networking, news and updates.
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Stickler Syndrome Support Group (Popularity: )
http://www.stickler.org.uk
Information and support for people affected by Stickler Syndrome. UK-based, but with international links.
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Stickler Syndrome Outreach - Oregon (Popularity: )
http://oregonsticklers.homestead.com
Reaching out to those in Oregon who are affected by Stickler's Syndrome.
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Microtia - Congenital Ear Institute (Popularity: )
http://www.microtia.net
Information on microtia for families and health care providers. Spanish version as alternative.
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Treacher Collins Syndrome - A Personal View (Popularity: )
http://www.treachercollins.co.uk
Information, personal insight, discussion forum and the exclusive "TCS Around the World" feature.
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The Treacher Collins Family Support Group (Popularity: )
http://www.treachercollins.net
Information regarding the syndrome, genetics, hearing aids, links and support groups.
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Treacher Collins Connection (Popularity: )
http://www.tcconnection.org
Building a community of people with Treacher Collins syndrome and their families in an environment that transforms people through face ...
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Treacher Collins Foundation (Popularity: )
http://www.treachercollinsfnd.org/
An organization of families, individuals, and professionals who are developing and sharing knowledge about Treacher Collins syndrome.
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Maryland Society for Cleft Lip and Palate Children (Popularity: )
http://www.msclpc.org
For children with cleft lip/cleft palate and their families and friends.
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Cleft Lip and Palate Association of Ireland (Popularity: )
http://www.cleft.ie
An Irish voluntary group providing support and information for parents of children with cleft lip and palate and those directly ...
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Smiles (Popularity: )
http://www.cleft.org
Cleft lip and palate support group providing help on craniofacial issues and an overview of cleft palae management
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American Cleft Palate/Craniofacial Association (ACPA)/Cleft Palate Foundation (Popularity: )
http://www.cleftline.org
Information and support from this newly combined organization.
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