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New Sites - Main » Health » Support Groups » Conditions and Diseases » Genetic Disorders |
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Thalassaemia Club Hospital (2nd September, 2010) : Thalassaemia Club Hospital Ampang (KTHA) is now an associate member or affiliated to the Ampang Hospital Volunteer Association (PESUHA). It was agreed unanimously by committee members from both sides. Where the idea was first suggested by Enick Muhaidin, Head ... |
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Peter's Anomaly Support Group (27th April, 2005) : An online support group for people dealing with Peter's Anomaly. |
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Trisomy 18 Support Online Community (27th April, 2005) : Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey. |
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Trisomy 18 Angel (27th April, 2005) : This site was made in memory of our daughter Abigail Renee, to help other families who have been given a diagnosis of Trisomy 18. |
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Trisomy 18 Moms (27th April, 2005) : A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web. |
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Top Sites - Main » Health » Support Groups » Conditions and Diseases » Genetic Disorders |
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Cornelia de Lange Syndrome (CdLS) Foundation Outreach ( ) : Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed
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Peter's Anomaly Support Group () : An online support group for people dealing with Peter's Anomaly.
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Trisomy 18 Support Online Community () : Participate in this support group for those pregnant with, parenting, or grieving the loss of child with Trisomy 18. Includes resources for all stages of the journey.
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Trisomy 18 Moms () : A place to list your Trisomy 18, Edwards syndrome memorial site , get help making a website, to share your unique story via the web.
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S.O.F.T. () : A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
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