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Information about Angelman Syndrome and the Foundation for doctors and families. Research, activities and groups.
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URL: |
http://www.angelman.org
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Title: |
Angelman Syndrome Foundation, Inc. OCo Research, Genetic Counseling, Diagnosis, Seizures, Angelmans Syndrome Association |
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Description: |
Angelman Syndrome Foundation, Inc: The Angelman Syndrome FoundationOCOs mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. |
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Asf
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Donation
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Donations
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Foundation
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Fundraisers
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Fundraising
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Medical Research
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Online Fundraising
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Related Sites |
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ASSERT - Angelman Syndrome Support Education and Research Trust (Popularity: ): Support for families with a member with Angelman Syndrome in the UK. Newsletters and links to other AS sites.
The National Spasmodic Torticollis Association (Popularity: ): Californian non-profit organization, providing support, referrals and information for patients and family members.
Dystonia Medical Research Foundation (Popularity: ): Canadian Foundation supporting research, awareness and support related to dystonia.
Care4Dystonia (Popularity: ): Information about dystonia, treatment, toxin use, medical care and alternative therapies. Newsletter.
Orthostatic Tremor (Popularity: ): Updated information, treatments, coping and experiences related to orthostatic tremor.
The National Tremor Foundation (Popularity: ): UK-based Foundation offering information, support and advice to people of all ages with tremor.
Angelman Syndrome Association Australia (Popularity: ): Information from the Australian Angelman Syndrome Association.
BEBREF Blepharospasm Pages (Popularity: ): Initial symptoms, cause and treatment are discussed, and available publications are listed by the Benign Essential Bleparospasm Research Foundation.
TorticollisKids.org (Popularity: ): An email community that includes FAQ, helpful hints, links, surgery and contact details.
Torticollis, Keep Hoping (Popularity: ): The site describes personal experiences and offers background information.
National Infant Torticollis Association (Popularity: ): Describes different causes of torticollis in infants. Also provides definitions of medical terms and the personal story of three children.
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