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Details: |
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Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
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| URL: |
http://www.spiritoflo.com
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| Title: |
The Spirit of Lo - One Family's Extraordinary Journey of Raising a Child with cystic fibrosis |
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| Description: |
The Spirit of Lo - A family triumphs as they raise a child with cystic fibrosis, a chronic, life-threatening disease, also impacting their insurance, finances, faith, insomnia, parenting and marriage. |
| Specialized in: |
Chronic Illness
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Ambry Genetics (Popularity:  ): Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing ...
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North American Cystic Fibrosis Conference in New Orleans (Popularity: ): Information on program and location.
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National Cystic Fibrosis Awareness Committee (NCFAC) (Popularity: ): Helps to advance the public awareness of the genetic disease. Site includes mission statement and message board.
Cystic Fibrosis Medicine (Popularity: ): Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to ...
CF Prescriber (Popularity: ): Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and ...
New Jersey State Organization of Cystic Fibrosis (Popularity: ): NJSOCF provides direct, hands on financial assistance to CF patients throughout the state, counseling, referrals and educational materials to patients ...
Cystic Fibrosis Victoria Inc (Popularity: ): Information about Cystic Fibrosis and the organisation, online chat room and message board.
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